Words are more like Cats than Dogs
A Commentary on Aphasia
Bayard (“By”) Baylis
Aphasia is an acquired communications disorder usually as a result of a stroke or a brain injury. It strikes approximately 100,000 Americans each year. It is more prevalent than Parkinson’s disease, but fewer people are aware of it, and fewer still familiar with it. It affects different people differently. In my case, I have difficulty in remembering words on call, and in following arguments and directions, especially verbally. I need to see something in writing to be able to digest it slowly. For someone whose life revolved around the use of words and arguments this has been difficult. The following essay is my attempt to describe what it’s like trying to work with words and arguments suffering with a mild case of aphasia.
Due to a medical episode in March, 2009 and the onset of a mild case of aphasia, I have come to the realization that words are more like cats than they are like dogs. Cats are independent and dogs are dependent. One wag put it this way: “Dogs think they are people. Cats know they are better than people.” Dogs come to you when you call them. Cats come to you when they want to come to you. That is a perfect description of words to someone who is suffering with aphasia. Words come to you when they want to come. They don’t come to you necessarily when you call them.
Aphasia can be an insidious condition. Neurologists call it a deficit. People suffering from it lack the ability to find or remember the right words on demand. Much of the time the only person that recognizes that you are suffering from it is yourself. You know what you are thinking and trying to say, but you just can’t find the right word to express your thoughts. You go ahead and say something that still makes sense but it is not quite exactly what you wanted to say. Because you are carrying on a rational conversation, the person to whom you are talking has no idea about the battle that is going on in your mind. It is a battle of wills. It is a battle of your will against the will of the words that are locked in the recesses of your mind. Words are acting like cats and are not coming to you when you call them. Hours or days later the right word comes to you, but it is too late to put a perfect end on that argument in which you were engaged.
Arguments are like geometric solids. You should be able to pick them up and look at the various facets of an argument, just like you can pick up a geometric solid and look at the various sides of the solid. The person who is suffering from aphasia has difficulty in doing that, at least that is what I have found in my case. In addition to not being able to find the right word to use in a particular setting, I have had difficulty in understanding how particular words used by others fit into the argument that they are trying to establish.
The human brain is a marvelous entity. Now, there is an example of what I have been trying to say. “Entity” is not quite the word that I want to use, but I can’t find the right word so it will have to do. How do words get into the storehouse of the brain? How do we learn new words? That question has been around in one form or another for more than 2500 years. Confucius answered this way: “What I read, I forget. What I see, I remember. What I do, I understand.” Words become part of our usable vocabulary as we use them repeatedly. What is happening in the brain? Every time we use a word, either a new synaptic connection is built, or an existing one is strengthened. What appears to be happening with aphasia is that something is interfering with those synaptic connections. Part of what is marvelous about the brain is that when one route is broken, the brain constructs another route. For dog lovers among the readers of this, “There is always more than one way to skin a cat.”
How am I learning to cope with aphasia? I remember an old joke, the throw-in line from a television commercial, and a piece of advice that my Babe Ruth baseball coach kept repeating and repeating. The old joke is the one about a young musician standing on a street corner in New York City with a violin case in hand. He asks an elderly gentlemen seated in the bus stop pavilion, “Excuse me, sir. How do you get to Carnegie Hall?” The elderly gentlemen seeing the violin case, replies wryly, “Practice, practice, practice.” You may have seen the television commercial in which an amateur softball shortstop makes a few attempts at fielding ground balls and flipping the ball to second base to start a double play. The amateur shortstop gets it right once and an announcer says, “Amateur athletes practice till they get it right.” The scene fades out and in fades the scene of a very recognizable professional shortstop. He is taking ground balls and throwing them toward second base to start a double play. The announcer then says, “Professionals practice until they can’t get it wrong.”
In music, and athletics, it is universally accepted that to succeed, you must practice. In education, there is a debate about how much practice and repetition is good for students. However, research in cognitive science clearly shows that for new skills and knowledge to become second nature, sustained practice beyond the point of mastery is imperative. There are three keys to remember in this statement. The first key is that to obtain mastery in a new skill or knowledge it is necessary that we must learn through practice. One undeniable aspect of practice is time on task. We must spend time doing it. How long does the professional musician spend practicing? How long do the top college basketball teams practice? Coach Izzo, from Michigan State University, is known for his foul shooting prowess and the demands on his players to be able to shoot free throws. Coach Izzo has been known to make more than 100 consecutive foul shots. How did he get to be that proficient? When he was a high school player, he missed a foul shot that could have propelled his team to a state title. He vowed that he would never be in that position again. In his spare time, he began shooting foul shots and would not quit until he made 25 in a row consistently. When he reached that plateau, he upped the number to 50, and so on. When he became a coach, he “challenged” his players to do the same. Practice, practice, practice!
So, practice makes perfect. Not exactly. The second key is that through our practice, we must reach the point of mastery. It is not enough to just practice. I don’t think that I will ever forget my Babe Ruth League baseball coach. We practiced twice a week for several hours each. He would spend the first 30 minutes of each practice session teaching us skills. The next 30 minutes were spent going over skills that we learned in previous practices. The remaining 60 to 90 minutes of practice were spent in batting practice or in running through game situations. However, no matter where we were in the practice, if one of us made either a physical or mental mistake, Coach would stop practice right then. If the mistake was mental, he would ask the involved individual what he did and what should he have done. If the mistake was physical, Coach would stop practice and have us repeat the action. We would repeat it until we got it right several times in a row. I don’t think I can count the number of times that we heard Coach say, “Practice doesn’t make perfect, perfect practice makes perfect.”
The third key for new knowledge or skills to become second nature is sustained practice beyond the point of mastery. The concert pianist practices a piece until she can play it without thinking. The fingers just go to the right keys by themselves. She’s done with that piece, right? No! If she wants to maintain that piece in her repertoire, she must continue to practice it. I remember very well a conversation I had with a concert pianist that I had asked to become chair of a music department. After three years in the job, the individual asked to be relieved of the position. This individual was doing a great job as chair, so I asked why give it up. The answer was very quick and to the point. Not enough practice time. Instead of eight hours a day, the pianist could now only find two to four hours per day to practice. That was not enough to maintain perfection in the pianist’s repertoire. Sustained practice beyond the point of mastery is the key to success in the concert arena.
Time on task! Perfect practice makes perfect! Am I just talking about music or athletics? No. I am also not just talking about those disciplines that are considered practical or skill-oriented. I am talking about learning in general. Richard Light, a Harvard professor, in his book Making the Most of College, asks the question, “What is the difference between the typical Harvard student and the typical community college student?” His answer may not agree with your intuition. He said that the primary difference is not innate ability. He suggested that there were two significant differences. The first was the expectation of necessary study time. Most Harvard students come to college expecting to study many hours a week. The second difference was that most Harvard students spent the number of hours studying that they had expected to spend. Learning is important to typical Harvard students. They spend the time necessary to learn.
In terms of my aphasia, I must spend time with words. I must use them over and over again. I must find new words or forgotten words and use them correctly. Perfect practice makes perfect! What kind of practice? I find cross-word puzzles helpful. I find reading helpful. However, the most helpful exercise is writing. In writing, I have to find that right word by digging around in the cluttered closets of my mind. I must use words until I am comfortable with them and they are comfortable with me. Just like cats, they must want to come to me and stay with me.
mike says
As a speech pathologist, I find that first person accounts of aphasia are invaluable when trying to understand this disorder. This was a great read and full of insight. Please write more. Thanks
By Baylis says
Mike,
Thanks for your words of affirmation. Since writing is the best way for me to comunicate these days, I plan to continue writing. Any suggestions about what you would like to know concerning my ongoing battle with aphasia would be most appreciated. The two greatest frustrations that I have are 1) the inability to quickly recall things and names that I know I should know; and 2) the inability to follow directions (especial oral directions, but even sometimes written directions). I have messed up my computer several times in trying to add features or functionaility. For example, I somehow lost the ability to access Greek letters so that I could use my favorite way of giving by initials. MY initials are B B.As a mathematician that a natural beta- squared . I had to give up my blackberry because I could not maniipulate the small keys and respond to propts quick enough. I went to the wiereless phone store to get the easiest phone they had to operate. Alll I can do on it is talk; no pictures or texting, so definitely no calendar program. Amazing they labeled this swap an upgrade because that the only label they had in their system for a phone exchanbe. I had an old iPAQ 3650 in the back of one of my desk drawers. I got it out to to use it, but of course the battery was dead. so i bought a new battery. It took me two hours to replace the old battery, because I had trouble understanding and following the scant directions that the package had. After I got the new battery installed and the iPAQ was running, I tried to sync it with my new laptop. The sync program was out-ofdate. It has taken me two days to get a new synch program installed and possibly working on the laptop and the iPAQ. The first sync of callendar and contacts seems to be good. BUt I’ll wait until tomorrow until I declare victory.
Thank you, please stay in touch.
By Baylis
Michael Biel says
Hi BB,
I think the thing that interests me the most is your experience “from the inside” of what aphasia is like. I loved your description of dogs and cats and word finding. Describing word finding is difficult. I’m not sure it’s something we “experience” until it goes wrong. With my clients I sometimes use the analogy of trying to catch a floating dandelion seed. If you reach out and grab it, it squirts away from you. The way to catch it is to put your palm (mind?) in the right place and let it come to you. I’m also interested in your observations of the things that you think help you. I completely agree with you that practice needs to continue until the skill is mastered/automatic. I think a lot of improvement in therapy fails to carry over to real life because the therapist moves on to different skills/items after a certain basic criteria of success is reached.
Keep working on your language skills. Research in aphasia shows pretty strongly that individuals with aphasia can continue to improve their language skills no matter how long post-stroke they are. Shoot me an email. I’d like to ask you some other questions about your aphasia if you don’t mind.
Mike
By Baylis says
If my experience with aphasia can help other individuals and familys then I am glad to share them. I would also like to communicate with others in academia who had experiences with aphasis.
By Baylis
By Baylis says
Dear friends,
Today is a milestone! My wife left me alone in our house for an hour for the firs time since my seizure while she went out. Nothing happened! I really don’t know what has been harder, living with aphasia or epilepsy.
Living with epilepsy is somewhat like libing with a time bomb in your head waiting for it to go off. I am on strong antiseizue medication so nothing is supposed to happen. BUt the doctors make no guarantees. Tonight at the dinner table, I was staring at a magazine that was across the table when my wife as, “What’s the matter?” I said “What do you mean?” SHe said “When you stare blankly like that is scares me. Apparently that’s what I was doing just before the first seizure.” Because people in my church know I have had a series of seizures, they seem to be extra careful and nervous around me. THey keep asking, “Is everything Okay? Do you feel Okay?” Have you had any trouble recently?” After I have been in the restroom for a couple of minutes, someone will come in and ask me if I’m alright? I Know they are well meaning, but their attention makes me feel uncomfortable. I don’t want to be different.I keep asking myself “Will I ever overcome these feelings?”
Living with the aphasia I have almost gotten to the point of knowning what to expect. I know that I can’t follow a list of verbal instructions, and sometimes even written directions. Telephone calling trees are a bane. I can’t remember what instruction goes with what number and I can’t write down things fast enough to be of any help. Unless there is an outline, I have a lot of trouble following multi-point sermons or Sunday School lessons. I never was a very good proof reader. Now my proof reading skills have slipped even more. After I compose something on the computer, I print it. I proof it and I have my wife proof it. I then go back and make the corrections, being carefully to put a check mark along side each correction that I make. I reprint the document and my wife proofs it again. Even though I have put a check mark next to all the corrections, there are usually one or two that somehow didn’t get made. I joke with my wife that I am going to take the wireless keyboard that I bought at Staples and get oanother one that knows how to spell. I have to work very hard to remember doctor’s appointments coming up. I have them entered into my outlook calendar and I look at it several times a day. When I go to bed at night. I know what the schedule is for the next day and i know what we have to do first take pills or eat breakfast. When I get up in the morning, my mind has deleted the whole schedule for the day. I go to the computer and as soon as I bring up the calendar. I remeber not the current day’s schedule but the rest of the week. That one little clue brings back the schedule for the whole week. I think working cross word puzzles is helping my word memory. In fact this past week as I was doing a cross word puzzle in the paper, I said to my wife, I recognize this puzzle. SHe said, “What do you mean?” I said I have done this puzzle before. I pulled out the paper from three days earilier and there it was. The newspaper had made a mistake and repeated a puzzle. I can’t really say if writing has become any easier. I still get loads of ideas for essays. But as I get into the writing, I get bogged down in a couple of ways. The first way is that I more ideas than I can put into the essays. Also as I proof the essays, I will think of something else that I should say so I add that. This means the essays take forever to write. One thing I have noticed is that my sense of humor (strange as it was) is coming back. Numerous people that I come into contact with have made that observaion. They say “THe Old By is back.” I usually respond that I don’t want to be the “Old By” “Former By” is okay, but not “Old By.”
The US congress has proclaimed June,2010 as National Aphaasia Awareness Month. For more information on this go to the National Aohaia ssociation website http://www.aphasia.org
Jen Reed says
Hey Dad, I really enjoyed this essay. I think the sense of humor is coming back, and I know you don’t want the “old” By back but I am glad I have any of the “Bys” around. This essay was very easy for me to follow, I really could understand this one, maybe it wasn’t the seizures and the brain tumor and all that stuff that did this to you, are you sure that this isn’t a family thing that has gotten us both and we’re on the same level now? Just kidding around with you Dad. Keep writing, I enjoy reading them, especially since I know you enjoy writing them. Love ya, Jen