Recent events have reminded us of the unpredictability and mercilessness of epilepsy. A fifteen-month old baby was visiting her grandmother, when the grandmother had a seizure, fell on and suffocated the baby. The story may be found at
http://www.mlive.com/news/grand-rapids/index.ssf/2010/07/holland_1-year-old_killed_in_f.html
The grandmother had been an epileptic for more than thirty years, but appeared to have her condition under control with medication. It had been years since the last seizure or even a sign of a seizure. By recounting these events I mean no disrespect to the families or individuals involved. I am attempting to illustrate the capriciousness and unpredictability of epilepsy and anti-seizure medication to serve as a warning to epileptics and their families. To the families involved in this tragedy, I express my condolences and sincere sympathy.
My last appointment with the neurologist was the day after the above story hit the news wires. Referring to this news story, she reiterated several times that anti-seizure medication is no guarantee against seizures. She continued by saying it is at best a pledge of assistance in holding back seizures. She questioned me and my wife, Elaine, about my behavior and conditions over the past month. She was pleased with our answers and the test results from the last round of tests. She said the medication and dosages seemed to be working so that she thought it would be best to continue me on the same medications and dosages for a while, rather than risk a change. She also said that she wanted to see me in another month after another round of tests. She then looked straight at Elaine, and said “He’s doing very well.” But then she added sternly, “Watch him carefully, and don’t leave him alone.” I realize the grandmother in the above story had no control over her seizure. I also understand that the longer one goes without a seizure, the more confident one gets in believing that the seizures are gone forever. However, as a grandfather myself, I kept thinking how would I and my family live with our heartbreak if something like the above happened to us. No matter how inconvenient or annoying I find it to have someone watching me all the time, I then remember that it is better than the possible alternatives.
The neurologist turned to me and asked about caffeine consumption. I said that I was careful about getting sodas without caffeine and that I have had only one cup of real coffee since the seizures this past December, however, I have had several glasses of iced tea.” She said “It appears that you are behaving yourself most of the time. Continue doing that, but do better with the iced tea, and we may be able to arrange another cup of coffee for you in a couple of months.” Well, I guess that gives me something to anticipate. Do you know that decaf coffee doesn’t tastes all that bad? It is definitely better than I thought it would be.
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